All publications

Journal

A matrix tool to foster patient engagement in children, adolescents and young adults: report from a multistakeholder workshop

Journal

Better Medicines for Children: Lessons Learnt and Share Learnings at the EFGCP Annual Paediatric Conferences

Journal

Using facial reaction analysis and machine learning to objectively assess palatability of medicines in children

Journal

Feasibility of an App-Assisted and Home-Based Video Version of the Timed up and Go Test for Patients with Parkinson’s Disease: vTUG

Journal

Video-based assessments of activities of daily living: generating real-world evidence in pediatric rare diseases

White paper

The Impact of Video Electronic Outcome Assessments (vCOAs)

White paper

How to Meet Regulatory & Compliance Requirements for Capturing eCOAs in Clinical Trials

Journal

The Digital 1-Minute Walk Test: A New Patient-centered Cardiorespiratory Endpoint

White paper

Measuring What Matters with eCOAs: A New Era of Patient-Led Innovation

Journal

Recommendations to address respondent burden associated with PROs

Journal

A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (XLH)

White paper

Enhancing Global Studies with Commercial-Grade Wearable Data

White paper

Pixels or paper? Exploring Patient-Reported Outcomes (PROs) in Clinical Trials

White paper

Video-Based Assessments to Digitize COA: validating vTUG for Parkinson’s disease

Journal

Development and usability testing of an ePRO solution for patients with inflammatory diseases in an ATMP basket trial